My 2 ½ yr old son, DJ, has been diagnosed with Klinefelter's Syndrome with autistic tendencies. For those who don't know what Klinefelter's is, it means he has an extra X chromosome. Instead of having XY like other males, he has XXY. He has almost no speech. He doesn't say ma-ma or da-da or ba-ba. He doesn't wave goodbye or hello. He isn't potty trained. He doesn't always answer when he's called. He rarely follows simple commands ie "come here", "stop", or "give me." He has no sense of personal danger. He would readily climb out the window and we live on the second floor.
We're not rich people. Not even well-off. Hell, I'd go so far as to say we're poor. We're a family of six just trying to get by. Now, he needs so many dr's and therapists that my head is spinning. I don't know which way to turn any longer. I've finally set up the speech therapy for twice a week at a local hospital. Which is a god send because we are running out of time to teach him language. But I can't find a pediatric occupational therapist anywhere. I'm pulling my hair out. The hospital where he's getting the speech doesn't have a peds OT any longer. It seems as though all of them are running for the suburbs and better pay. Can't blame them...but damn, what am I supposed to do for my little boy?
Ask anyone, he is the sweetest, cutest, most adorable little boy....I'm not just saying this because he's mine. Everyone has said this from the day he came home from the hospital. It breaks my heart to know that he will probably never have children of his own. That he will probably have difficulties with reading and writing. That he will probably be under a dr's care for the rest of his life.
I'm just ranting because I am having so much trouble just finding the care for him - haven't even begun on the how we're going to pay for it part....the gov't will help with some/most...depends on how they feel the day they get the application, I guess....for now I just have to cross my fingers and do the best I can....wish me luck.....
